tag:blogger.com,1999:blog-455785201122974355.post5388372224193691234..comments2023-06-12T11:27:34.308-04:00Comments on Musings of a Maidel: The Burden, part IMusingMaidelhttp://www.blogger.com/profile/13402071666900305449noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-455785201122974355.post-46939992920653644002009-06-23T02:17:13.631-04:002009-06-23T02:17:13.631-04:00I know you've heard it before, but I just have...I know you've heard it before, but I just have to say how very normal that feeling is, and that it doesn't at all take away from the greatness/inspiration/whatever of what you do. With every difficulty in life comes the struggle to accept the rosier picture that just isn't. I HIGHLY doubt that there is anyone who really feels uplifted and inspired all the time throughout the difficulties -- they just keep thinking of it to help keep them going...<br /><br />True, I wouldn't actually know because I've never had this particular challenge. But I think there are certain common threads that run between every kind of difficulty; when we see those instead of the differences then we can all learn from and support each other.Bas~Melechhttps://www.blogger.com/profile/01511197551248863790noreply@blogger.comtag:blogger.com,1999:blog-455785201122974355.post-47026846811527490562009-06-01T15:14:05.715-04:002009-06-01T15:14:05.715-04:00I never thought about what it is like to have a si...I never thought about what it is like to have a sibling with special needs! Wow! I really respect you for dealing with this in such a positive way!<br />It must be quite a challenge to have a younger sibling with the needs that you describe and to have to deal with it on a daily basis...<br />Remember that everything in life is a test and each person is given their own pack of challenges with the tools to be able to go through life and grow through their experiences.<br />Although it may not be easy to hear right now, one thing that gave me chizuk in the tough times is that through going through painful/difficult moments, you will be able to understand and help other people going through similar experiences. And it feels soo good to be able to strengthen others!! You will feel stronger and so will those that you choose to strengthen!!<br />Hatzlacha and may Hashem give you lots of extra strength and the ability to remain positive always!itsagifthttps://www.blogger.com/profile/06942149774297914315noreply@blogger.comtag:blogger.com,1999:blog-455785201122974355.post-71496578968412980622009-06-01T14:07:28.029-04:002009-06-01T14:07:28.029-04:00Chavamf, I hear you. It isn't easy. Obviously, it ...Chavamf, I hear you. It isn't easy. Obviously, it is very different for you, as the special needs people I deal with are not family members, but still, I can only imagine how hard it is for you. And how special. <br />Hashem is watching and He will repay you for all this. <br />:-)Something Differenthttps://www.blogger.com/profile/17225114844104235510noreply@blogger.comtag:blogger.com,1999:blog-455785201122974355.post-21445157170152604832009-06-01T11:49:41.402-04:002009-06-01T11:49:41.402-04:00thanks for that. I really do have a lot of suppor...thanks for that. I really do have a lot of support. I'm not usually so down, but every so often it hits me again. I do love and appreciate her - usually. I try to stay positive and think of all the inspirational stuff. That's just a bit hard to do while changing a 14 y/o's diaper or shlepping her from the stroller to her chairMusingMaidelhttps://www.blogger.com/profile/13402071666900305449noreply@blogger.comtag:blogger.com,1999:blog-455785201122974355.post-55690175277954405642009-06-01T09:48:55.823-04:002009-06-01T09:48:55.823-04:00I have never met a person who feels the inspiratio...I have never met a person who feels the inspiration of it all of the time. Most people will tell you about the good stuff when they talk to you because they want to stay bright, both to you and to themselves. But in my mothers group for moms of special needs kids, we have a rule that nobody can say, "Hashem gave you the challenge because you're special enough to handle it", etc., and in that group we kvetch.<br /><br />One mother with a daughter with Downs has spent time mourning the fact that her older daughter doesn't have a sister/playmate/confidant. <br /><br />My own special needs kid is high-functioning enough to interact, but there are still many challenges for my other kids. I'm currently starting a support group for siblings of special needs kids, but I don't know of any for older siblings like you. Wherever you live, maybe there's a frum agency that services special needs families that might be able to hook you up with someone in your position who can listen to and understand the pain, and you can give each other chizuk...<br /><br />I wish you koach.staying afloatnoreply@blogger.com