I don't know if I've mentioned it before, but I have a sister a few years below me. She's my only sibling, so in the natural course of things, we'd be very close. The thing is that we're different. Not in the normal sense of having temperaments that naturally cause fights, but in a real way. She has a genetic disorder, leaving her unable to walk, talk, or even see very well.
I know everyone always talks about the amazing things they learn from being the sibling of a special-needs child, and I do feel what they are talking about, but there are times when I wish she could be normal. That I could have fights with her about closet space. That I could help her with her homework. That I could just be a normal girl with a normal family. That I could have known for even one second the simple joy and lack of responsibility of childhood.
But if that can't happen, and at this point in time there is no natural cure (outside the realm of nissim gluyim), I wish that I could always feel the way others say they feel. That I could always feel the inspiration of living with a special neshoma. That it won't bother me when people reject me because of her.
I went through a stage in high school when, while I wasn't actually ashamed of her, nor did I resent her place in my life, I felt ... I don't know how to express it. Like her existence was a burden on me. I thought I was over it, but every so often it rears its ugly head. And I have to deal with it again. And again. And again. And I'll have to keep dealing with it forever (she should live ad meiah v'esrim). I just daven that Hashem will give me the strength to be able to love her as she needs and deserves to be loved and treat her like the very special person she is.
2 days ago